Huh? Where'd that come from...

So I spoke with McDr for a bit today about how Alana's been doing throughout the weekend and she also let me know of the *new* things/procedures that Alana needs to have done so here goes.

First with the procedures and those include on Wed having a barium upper GI study done. This outta be fun :/ They are at least going to try and flavor the barium to chocolate to try and encourage her to drink it. From there they will do the x-rays and we again, wait for results. On Wed as well I am to schedule Alana's appointment with the GI doctor and she will be having another EGD (Info) done as well as a colonoscopy both with biopsies. They are making sure she's not having reflux (for the 100th time) or having dramatic changes in her whole GI system due to the increase in overall GI problems she's been experencing. I am not 100% clear on what they hope to accomplish in those regards and will find out more when her appointment happens, sometime in August...yes having 1 traveling pedatric GI doc sucks almost all the time.

The other thing that came up was the dreaded NG/G tube issue. Well aparently the NG tube is no longer an issue as the GI doc feels that she doesn't need it. My bood started to boil when McDr mentioned that but then was put on ice as she told me he'd like to go straight to a G tube. After going over her issues he felt it best to just go straight to the G tube 'cause this isn't something that's just going to go away in her case and if it helps her gain and grow then just skip the month trial and get it done. This was both a relief and scary thought. I've been keeping a calorie log for her and she's consuming between 800-1000 calories a day and for a 5, almost 6 year old, that is not enough for even a couch potato kid. McDr and I will touch base again soon and talk about if/when we have to get to that point, is it now as in next month or is it now as in August. The other thing that he mentioned that took me completely by suprise was the thought that she may have to have what's called a Fundo (info). This I am 100% against. She's had no documented reflux and when she first got sick we tried every reflux med and had testing done b/c they did think her cough was caused by reflux and then that her pneumonias were from reflux asperation as well.

As for Alana overall she's doing crappy. She's been sleeping until 9-10 a.m. and still waking up tired and sore. She's wanting her back or her feet rubbed constantly and just very, very iritable and fussy. One minute she can be smiling and goofing off then the next it's like world war 3. She ran a good fever all weekend and then suddenly dropped down to 94 again. I am glad that the fever broke but just not glad that it went down to 94. She was shivering and cold to the touch under 2 blankets when it was 78 degrees outside! She's very pale and those damn cirlces under her eyes might as well be blackeyes from her getting into the ring with a heavy weight boxer! The patches that she gets on her tounge are back as well and that usually means that she's stressed and getting dehydrated. Neither is a good sign. McDr said if she's not doing at least a tiny bit better or drinking better by Wed to bring her in for an admit to get IV fluids and a workup. At this point I am offering her any soda she wants if she would just drink more than 4 ounces of it.

On to a great thing..today in the mail she got a package from one of her buddy's Deb and was she ever happy! It was a giraffe shirt and socks and she's refusing to take them off--ever. Nice to see a great big smile on her face!! Thanks Deb!