Well things have been typical crazy around here. Aside from everyone adjusting to being home after a two week hiatus, there's always those things that come up out of the blue and shake you silly. It's nothing with Alana (besides the usual),it's something with someone else close as close can get and it is what it is.
Alana is staying typical untypical Alana, she's been running a fever for the last 2 days, between 100-101.8, she's not eating or drinking enough which it's at these times, and these times only, that I feel less resistant to the tube feeding issue. That is not a step am 100% sure of yet, it's just sitting there in the background of my mind. Other then the fever she's still battling her GI system. We had added the Phillips to the MiraLax and it worked great for 1 day then the next she had a major problem with it. We stopped both med's for a day and she was back to square 1, in pain and unable to move anything. :\ Right now I am trying a lower dose of the Phillips and keeping her MiraLax the same.
On Monday she starts back at PT and she does not want to go. I think once we get there and she gets to see Gail and Jess (her PTs) that she will get over that. Her inserts to help with her pronation (Picture) should be in and ready for her to try. Hopefully this will help with the foot pain she has.
Noelani & Shaylin are back in soccer full swing and it's taking sometime to adjust to these late night (8 and 8:30 pm) games x2 a wk. We have to divide to get them to their games and then the following game we rotate. Getting Shaylin to bed at 9:30-10 o'clock at night is rough. She needs her sleep and she awakes, no matter what, at 6 am every morning!
If Alana has a fever again tomorrow it's back to McDr for a checkup and check in. If she gets over 102 for more then 24 hours it's admit time and with the fevers coming closer and closer the last few weeks it's something that is weighing on me greatly.
I think this holds true:
“Be faithful in small things because it is in them that your strength lies.”
No comments:
Post a Comment