Giraffes

Okay, this will be a short update but to get the major stuff out of the way, surgery is tomorrow at 10 a.m. Seattle time, 9 a.m. Alaska time. The appointments were long today but productive. We met the surgeon who will be doing the surgery and he did reiterate what Dr. Haun told us; even if there is mito, 9 out of 10 they are unable to be diagnosed due to the unkown-ness of the disease even after a muscle biopsy. The muscle biospy is just the best way to look for it.

We did make it to the zoo today and she lasted through the giraffe with honors and managed to do well throughout the rest of the time. It was a sorta rushed trip and we didn't get to see all the animals but she really didn't care about them anyway. After that we went for her clinic appointments with the surgeon and GA clinic for the green lights for surgery and they were suppose to be 15-20 minutes tops but of course, once her history was asked it turned into about an hour each.





On top of going to the zoo though she got to meet Linda and Jacob! She was soooo happy to meet them, as were Larry and I, and had a blast. She thinks Jacob is the greatest thing since sliced bread and he is a pretty rocking kid. It was so nice to spend time with another family that faces some of the same issues we do and to see them thriving and to see Jacob, who has to use O2, be such a strong, smart, and witty kid. He was telling us about getting dirt in his canula after slidding into bases at baseball. Wow! They may have some limitations but they can still be such supa stars it's incredible!

Tomorrow I won't be updating until she's in her room and settled unless I really get a chance to so it may be mid-evening until that happens.

Forgot to mention this yesterday: Dr. Haun asked and recived our permission to include Alana into a research program that he is doing. He needed 20 kids and he said he had about 7. He is looking at other areas of mito. and gave me the information on it so I will post more tomorrow about it. To me it seemed him asking for her to be included was a sign, not good nor bad, that he thinks this a good possibility for a diagnosis. :/