So we are still in la-la land. In the spirit of keeping this short and sweet tonight here's the short version:
1. The labs look good, in fact her B12 is on the tippy top of the high side so check one thing off the list. Her CRP was 1 point away from the high range, but again, not to uncommon with Alana so we are just leaving that at that. Check.
2. The chest x-ray was unchanged so that's both a good and bad thing. Good 'cause it's not worse, bad because she still has sticky-to-themselves lungs. The thing that trumps all of this and makes it a positive is that she's been able to keep her sats up and aside from a lot of coughing and a scratchy voice I think she's able to hold her own in that area--for now. Check, Check.
3. Her GI system refuses to cooperate. It is moving things, but not like it should. We are on the 2nd jug of Golytely, almost half way through it in fact. It's causing her to be swollen and uncomfortable and we keep having to turn it down, turn it up, turn it down, turn it up due to all of the issues it's causing. Not checked.
So, here I was thinking that 1 thing would not keep us here but gee, so much for that. It's also a little two-fold to be honest, her blood pressure has been high again all day today; 136/76. Her BP is usually a lot lower, even with all the things we deal with with Alana, high BP is not one of those.
What's left to do is finish cleaning out her GI system, have an abdominal x-ray, do a regular feed, and keep her BP within normal limits. Here's to tomorrow...
PS: Usually don't ask for things like this but there is another little girl, her name is Eithene, and her mom and I have talked about how she and Alana have a lot of similar issues, 1 main one being undiagnosed (for the most part) with the added bonus of "probable this, and probable that". Anyway--she's got a wicked infection and it really needs to get under control. I know that there are a lot of people out there praying for Alana so maybe while you are doing that you might send a few to Eithene in Mass.
3 comments:
Ah, we shall concentrate on inflating her lung and poop! Nobody like moms can get excited about that! Once cleaned out you can begin. Jess, all my love to you and of course we shall add Eithene to our healing circles, let her mom know we have quite a world wide circle. Love you Hun Debs (Sage)
Hi Jece
I wish I was there in that fort with Alana. I hope she and you get to go home tonight. Give her a big kiss from her auntie and let her know how much I love and miss her. xoxox your sis
im praying for both alana and eithene and do hope both girls get better and home again soon. All my love and huge hugs from across the atlantic jess. Lv rattles Xxxx
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