It's all about the hair...

So we made it through the first week of school for Alana. Aside from the face + foot = smooching, the daily trips to the nurses office due to very cautious school staff (I am NOT complaining-better safe then sorry!), tears due to music class (just way to much noise and moving around), I think she's made it through the week relatively unscathed. We had a lot of carry over this weekend though, fevers, a major, major melt-down when OT was trying to get her to cooperate on Saturday morning, and a significant lack of eating and drinking.

Although none of this was expected it has still been a rough few days but hey, we go ahead and decide that because she showed some signs of perking up on Sunday night we'd go ahead and skip out on Monday and take the girls to the state fair. We are brainiacs I tell ya! There are those windows of insight that you only get AFTER you have done something pure genius and can sit back smugly and look out that window and gloat about how you tricked the man, how you pulled a fast one. This was not one of those times. *grin* IT did go well, the girls DID immensely enjoy it (well they did until Shaylin discovered that they toy that you get after paying $5 at a game is a P.O.S and breaks on the way home), and Alana has paid for it all day today. I am still glad that we went, and even though I am still going to be going to bed early tonight to try and recover some lost sleep from Alana's restless night, it was worth it.

On the medical front not a lot has changed. She wasn't able to go to school today because like I said, she's having a rough time since last night and the fever finally has started to ebb so that's great news. She did have to go in for another x-ray this morning and an impromptu meeting with the GI nurse at noon so that killed another 2 hours of the day right there. Unfortunately those things that I've been doing to try and help her in that area are not working and she's been experiencing a lot of pain in her stomach and back area. The x-ray showed that she hasn't made much progress, not much at all :-/ so we are now going to be "hitting it from the top", i.e. something really nasty that I've been told fruit punch loaded with sugar will help hide the taste of. Great. Now she's going to be hurting, mad at me for making her drink something nasty, and running around the house like she's on crack. Just great.



We check back in on Tuesday with GI and then again of course on Thursday (the 10th) for pre-op. Taking this picture of her this weekend really reminded me why we are doing this. The whole thing is making my head hurt so moving on. Backtracking though, Thursday (the 10th) is the big neurologist appointment so just pray. Just pray that even if it's not good new's it's an answer that we can move forward (?) with.

Here's a then and now for you as well--this was last year at the fair, within days of each other exactly 1 year ago. So many things change, not so many things change.

Yes, that is the same jacket that she wore last year. Normally not a big deal, Noelani is wearing the same winter jacket although Shaylin is not. I'd have hoped though from 4.10 to 5.10 (years.months) she would have outgrown something!