Another day...

This is what she said when she woke up this morning; "Mommy, are we still in the hospital?", "Yes chicken-butt we are still here". The morning started early around here, like 1 a.m. early. She was desatting again last night and was 2.75 ltrs for her O2 needs and then that gave away to a 4 a.m. wake up call for the bathroom. The medication finally started to work and it took about an hour to get things done and her back to bed. From there McDr came in at 7 a.m. so at this point I gave up on sleeping any longer.



As of this morning not only did her right lower lung sound worse, well actually no sounds, but the left lower lung as well! This prompted the outlook of another chest x-ray (the girl is radio-active I swear), labs to check her CBC, electrolytes, CRP, etc. and if we can get her to pee a clean catch. McDr feels that not only are we dealing with the surgery and her lungs but we may be dealing with something viral on top of it all. Tomorrow morning we will get all the goodies from these tests but the good news is, drum roll please, that she's been down to 1 ltr since noon and has been able to stay about 92% for her saturation's! It's not great, and her RR is at 37 right now as I type this, but it's a start in the right direction.



Tomorrow she will probably have yet another x-ray, this time of her abdomen to check and see how the clean out goes. After 40 hours we are starting to see good results and good lord would I love to be using her g-tube for FOOD and not laxative. She's barley drinking, and eating is very minimal. I want to put this tube to use for the reason she has it!

So our goals for tomorrow/go home are:
1. Lungs need to sound stable enough to go home, i.e. no more 2 ltr desats, good movement, better x-ray.
2. GI system needs to be sparkely clean and ready to accept her g-tube feeds.
3. Labs need to be good with no signs of infection/electrolyte imbalance, etc.

Now a lot of these things can and are open to overall wellness so we will go from there. If 2 out of 3 are good then we go, if 1 out of 3 are good then we stay.

I am beyond tired, hence the reason for no update yesterday as I fell asleep before I had a chance to. I am feeling positive that she is on the mend, at least for now, so let's just keep that going in the right direction. We know that things with Alana are never going to be the same as they were even a year ago and this has been and is hard to accept. I think one thing this admission has taught me is nothing with her is ever going to be easy-peasy-japanasy but that's what makes her so special!


*Wrote this last night but the server was having issues at the hospital, I will update again later when all the answers come back for these things*