Tomorrow is the fun filled flight day. I will do regular updates while we are there, promise. Here is our appointment list so far (not in any particular order b/c I cannot remember what is where at the moment):
New visit with mitochondrial neurologist (no one is sure what he is going to eant done yet so we go in the morning with the thought that the rest of the day will be done running tests)
HRCT
Ultrasound of the diaphragm
Sleep study
PFT
Stress test
Pulmonary visit
Colonoscopy/EGD
GI visit
Labs (of course)
I think I am missing something but for the life of me cannot remember what it is at the moment. I still have a lot to do to get ready but didn't want to not post that we are indeed going and let you know a basics of what's what with appointments. I will update each night time permitting of course!
2 comments:
Jess, so good to see an update from you, I look often. Praying for an easy flight and all the appts. go smoothly for little Alana. Just know your family is always in my prayers-
Heidi & Jack.
Thinking of you all tomorrow.
Lots of love
xx
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