See, I didn't forget to update =) I can report that I am working my way back from my trip to the land of pity and woe's-me. That's a vacation I have been taking a lot lately and I am not sure why. I know that sounds dumb, the I am not sure why part, but still that's no reason to be getting all helpless and crap. But enough about me, moving on to "pumpkin" (her new official name is "pumpkin" and she will only answer to it, or so we've been told).
We are on plan b and she's on 2 antibiotics now. We didn't see any improvement by Friday so that's that. The good news though, she's not much worse; right now she's more pale and drawn then she is coughing. She's been pretty low-key for the last few days, which is to be expected I suppose. She's been having short, 5-10 minutes, bursts of energy every few hours and is up and wanting to play a board game or color.
She did have OT this morning (OT comes to the house) and they worked on massage and getting her to breathe better. I don't know if I have ever mentioned it but Alana does not breathe properly. Big surprise there I know, but combine inefficient breathing patterns and lung disease and on a regular day that leads to issues, throw in some pneumonia and you've got yourself a tricky situation. It was very relaxing for her I think, not to much movement aside from switching from back to belly, and a lot of massaging of her back and rib cage to engage the diaphragm (Alana 95% of the time does not use her diaphragm to breathe).
So overall we are home so that's the great news. I'd love to report that she's all better or at least on the mend but she's not there yet. Tomorrow is another day though and as long as she's not getting high fevers, coughing worse, or having overall anymore difficulties, then we can continue to remain at home. We are still not getting formula into her g-tube and I have only been able to get around 3-4 ounces of water into her plus her meds. It's at least 3-4 ounces more than she'd be getting if left to her own devices though.
I'll post again soon, sooner if anything changes either way. Thanks again, and again for all of your prayers, words of encouragement, and support; it truly means more than you will ever know.
1 comment:
First..gotta smile, she has her giraffe socks on! That made my day!
Second, I have just the thing to help her practice breathing to lift her tummy and I'll send it along,and for you, dear friend (cuz friend I love you I do tho never met) something to help hold tight when those dark times comes.
Tis normal to wax and wane like the moon. Show her tonight the lovely full moon, then set and all hold hands and make a wish, this is the Harvest Mon, one to reap all we have sown this year. Who knows could work and be a bit of fun.
SO when I am back to the shop Tuesday, I shall get a wee package ready for you all.
Question Jess. I have folks all over the world who would love to send cards. May they? If you prefer them sent in care of the post office this is fine, just fine. Please let me know... for now we're sending Reiki, love and light for each and every one of you
Love Sage (Debs)
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