McDr called and first and foremost the x-ray showed that her left side of her GI system was cleaning out well, but her right side hasn't. On that note though we are going to give it another week, the right side. What McDr is thinking is since the left side is looking well that we wait and see if the right can follow suit. Maybe now that there's some more room in there the rest that's full will work it's way out without having to undergo another procedure. Check back in a week on that one is the game plan.
On another note though she, McDr, said she spoke with the neurologist here about Alana again and gave him an update from Seattle and what's been going on, the increase GI, tone, eye drooping, etc., issues and he wants to see her back in his office for a "long" appointment and he expressed to McDr, who then expressed to us, that he feels she has mito. Now I've sat here for a few minutes trying to think about what to follow that up with. It's not that like we are not actively looking for that right now but to hear the doc here say "I think she has it, regardless of what the muscle biopsy says..." was a lot harder then I thought it would be. Maybe I am just tired. Maybe. This of course is just his opinion at this point, nothing more.
On a totally happy note, and yes, going backwards from last night with the bad/good news. Guess who's registered for kindergarten!! She is SOOO happy and telling everyone today that she's going to kindergarten and dancing around! I on the other hand am terrified! We still have a lot to do and get in order but we can handle that.
Also quick note here...EEG is on the 12th at 9 a.m. nothing more I can say on that one right now...I am still working through what they are looking for.
Love to everyone of you, thanks for all your support...even if I don't know your names.
2 comments:
(((Jess))) Its late but Im trying to get caught up here and everywhere! I owe you a long email but wanted to check up on Alana to see how shes been doing. Oh Jess(((Hugs))) I know, no shocker there as far as a possible diagnoses but I know how you feel. Ill never forget that moment when I first heard those words...all I could feel was my heart racing, not hearing much more of what he said afterwards...Its not easy to hear even when youve spent years longing for answers. Lots of prayers and loads of hugs, praying Alana is well tonight, give that sweet little kindergartener a big squeeze from Jack and I.
hiya jess
I know it is scary thinking of any possible diagnosis but you have all been battling the unknown for so long that once they source what is causing it all at least they can work with that. I know it must be really tough for you all, and i am thinking of you all.
Your all in my thoughts and prayers always. I hope that the appointment on the 12th goes ok. I will be thinking of you all. Good luck.
Lotsa lv n huge hugs to both of you. Rattles Xxxx
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